Dal Congresso nazionale dell'Acp un'indagine sui loro bisogni. Montini: "Gli interventi di supporto centrati sul disabile quasi mai rispondono ai bisogni della famiglia e non considerano quelli dei fratelli. Servono fattori di protezione"
ROMA - Individuare i bisogni dei fratelli dei bambini disabili, che spesso manifestano difficoltà relazionali e psicologiche: è l'obiettivo dello studio che l'Acp (Associazione culturale pediatri) propone in occasione del suo XXII Congresso nazionale, in corso a Palermo dal 7 al 9 ottobre. L'appuntamento, incentrato quest'anno sul tema "Bambini... in mente", dedica these days attention to the plight of so-called "siblings", often doomed to be forgotten by the plans and for the people and institutions that revolve around the family. Plays a key role in this context, the family pediatrician. According to the latest ISTAT figures, about 2.6 million, in Italy, people with disabilities more than 6 years living in the household, ie 4.8% of the Italian population. It is estimated that in a district of 100,000 inhabitants there are about 20 children in these conditions. A pediatrician has assisted 800 families with 3-4 patients with genetic disease and / or complex congenital disabilities.
"The support interventions, focused on Mobility, almost never respond to the needs of the family, and do not consider those of the brothers, "says Thomas Montini, representative of Acp Campania and referent study." For an effective support - still - is more necessary than ever to find 'protective factors' they are also targeted to the brothers: operators that support the family, which will enhance their openness to other social realities, and action to allow the brothers to build friendly relationships with peers outside (sports, school, recreation centers) and an operator who accompany their parents the disabled child to school or rehabilitation center or to help him wash.
is not the first time that the ACP addresses the question: "We already addressed the issue of the brothers and sisters of a child with disabilities or suffering from a chronic illness, who have defined themselves as 'unknown' in the history of the disease or disability, "said Paolo Siani, President of 'ACP country. "In 2005 the association had reported that studies have been largely devoted to the impact of disability on affected children and their parents and siblings lived in was almost ignored."
The presence of a disabled brother is often a source of great distress and suffering, not a responsibility which irreversibly affects the internal dynamics the family. In this context, the healthy siblings see their needs are often overlooked and are forced to make difficult adjustments. "For children, says the association - emotional stress acts as a 'poison' neural organization, particularly in areas that control emotions."
For this reason, the ACP proposes cross-sectional survey on the whole national territory, involving families, practitioners, pediatricians, and community associations. Among the measures that could be implemented, the association emphasizes the need for "a 'network' to prevent the family close in upon itself", "logistical support", "a good act of counseling and a streamlining of the bureaucracy that often forces families to strenuous trails for basic rights. "
"In a nutshell, is the 'system' that must meet the family and not vice versa, with an action type of tutorial and multidisciplinary," said Montini stressing that "the imperative is to facilitate the acceptance of the disease and support a path sustainable serenity that gives the parent and his family. "
(October 9, 2010)
www.superabile.it
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